National News

NICE guideline on Mental health problems in people with learning disability .

The  final guideline on Mental health problems in people with learning disability has now been published on the NICE website:

You can also find the supporting evidence, as well as all the stakeholder comments that were received during consultation and the responses to these comments. The comments were invaluable in helping to develop and refine the guideline. NICE have also produced an equality impact assessment to support the guideline.

The recommendations in the guideline have been included in a NICE Pathway, which is an online tool that brings together all related NICE guidance and associated products in a set of interactive, topic-based diagrams. There is a version of the guideline for people using services, carers and the public called ‘Information for the public’

‘Got My Back’ - a National Conference on Postural Care

12th September BIRMINGHAM

For too long many people with profound and multiple learning disabilities, neurological conditions or a movement difficulty have lived with discomfort and pain due to body shape distortions and lack of good postural care support.

Changing Our Lives is planning to host a national level conference in September to focus on postural care and we want to see a national level response to an issue that if tackled consistently around the country would have a big impact on people’s quality of life.

Read more ...

Handing the power to family carers through Positive Behavioural Support (PBS) resources

An article and resources on the Paving the Way website by Professor Richard Hastings (University of Warwick):

"I am a researcher, so I am going to start this blog with some research findings. In 2014, Gemma Griffith (Bangor University) and I published a study where we summarised research studies from around the world in which family carers of children and adults with learning disabilities whose behaviour challenges were interviewed about their lives. Throughout the Western world, family carers talked clearly about the struggle of supporting a child or adult whose behaviour challenges. Perhaps the strongest message from the 391 family carers was that the biggest stress and area of frustration for them was the problem of accessing services for their relative that were personalised and where paid staff and professionals understood their family member.

Also from research, we know that behaviours that challenge often (although not always) emerge early in the lives of children with learning disabilities. Whenever behaviours that challenge first emerge, they typically persist for a long time – often for decades."